Thursday, September 27, 2012

One Year Cranioversary

September is Craniofacial Acceptance Month.  It also happens to be the one year anniversary (Sept. 8)  for my favorite little fella, Desmond's, surgery to correct sagittal craniosynostosis. He had a checkup with the craniofacial team at Children's Hospital New Orleans in May and he passed with flying colors! No more checkups for a whole year.

Just look at that beautiful round head!  This was after his first official haircut.

I'm writing this blog post today for two reasons. The first is to say THANK YOU to all of you for your love and support during that crazy, worrisome, stressful and scary time.

Next, I would like for you all to help me thank three organizations that gave us support in that time of need by throwing some love back their way.

The first is Children's Craniofacial Association. They are a non-profit group out of Texas that provides everything from basic information and support groups to financial assistance. They awarded us a grant that made it a lot easier for us to travel out of state for Desmond's surgery.

The second organization is Cranio Care Bears. CCB is a non-profit run by two awesome cranio moms who send out support to families facing craniosynostosis surgery in the form of a care package for the hospital. Our package was full of thoughtful items that only a parent who has camped out in a hospital for several days would think of.

The third is Cranio Angels Network. This is an organization run by a cranio mom who makes adorable headbands for girls and pirate do rags for boys to help keep their incisions covered while they heal. Desmond rocked his pirate rag a few times after surgery and it was awesome! They also offer financial assistance.

So, back to the second reason for writing this post. What I am asking is for your support again. But this time, on the anniversary of Desmond's surgery, I ask that you send support to these organizations.

CCA accepts donations of money, volunteerism and fundraising.

Cranio Care Bears keeps a list of supplies that they need for the care packages and also accept donations of money.

Cranio Angel Network accepts donations of money also.

Please consider making a donation to one of these organizations. It's hard to put into words how much their support, no matter how big or small, meant to Desi and I during that time.

September is also Craniofacial Acceptance Month. Even though there are only a few more days of the month, acceptance should be on our minds always so please take the time to share this with your friends and family.
How can you say no to that face?!

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